All in AAC

The Common Cold, IV's, and Fire Trucks

I had planned my next blog post to be about our new homeschool year. Getting home from Cincinnati tumbled into a very busy week of adjustment to a new school routine, learning our way around some new curriculum, and merging the role of teacher with mom again.

To celebrate the completion of our first school week, we spent a beautiful Saturday morning playing and walking at the park. One of our new adventures this school year is to have a primary communication partner wear Nathaniel's talker so it is available to model his express language at all times. Rich continues to amaze me. He is fifty-five years old, raised seven kids, and could be spending his Saturday morning doing so many other things. But he was at a playground, learning a second language, and proving with his whole being how much he believes Nathaniel can live a normal life. In our adoption interview, Rich told everyone that he expects to someday do a backpack trip at Philmont High Adventure Ranch with Nathaniel. Many had expressions of doubt. What I don't think they realized was that Rich would help Nathaniel train for that outing from the beginning. Because you don't wake up fifteen years down the road and tell a kid his disabilities shouldn't stop him. You get on your hands and knees day after day and show him.

The Difficulties with Augmented Communication

Augmented communication is hard. Nothing about it is easy or normal. 

Take last Saturday morning.

Rich, Joe and Nathaniel were outside working on Josiah's bike. When I walked into the situation, Nathaniel was upset and on the verge of a big melt down tantrum. Rich filled me in that it was regarding a tool that Nathaniel had confiscated as his own, but Josiah needed periodically. I asked where the talker was, hoping to offer everyone another tool to work through the situation. The talker was not outside.

Augmented Communication - Part 5: MOMMY and 216 Other Words

Ben, Nathaniel and I went to Lowe's this week. Nathaniel had his talker in the cart and when the cashier started talking to him, I reached over and used the talker to say HI on his behalf. It is the easiest way to let someone know he is not going to respond verbally. Most often, hearing the talker catches people off guard and I can quickly sense the individual's familiarity and comfort with special needs children. The cashier came alive when she heard the device. She had questions. By the end of our transaction, she had shared that her own son has Down's Syndrome and was given a Speech Generating Device (SGD). He does not use it because he was teased and told it was for babies. She wanted more information. We wrote down the name of the app, name of my website, and the name of Nathaniel's new Facebook page.

Augmented Communication Part 4: Forty-One Words!

It has been awhile since I have compiled thoughts on Nathaniel's communication skills and use of augmented communication. We are headed to St. Louis Children's Hospital today to check in with the Aug-Comm team; I am excited to share Nathaniel's progress with them and thought I would use my preparation for the meeting to pull together a blog post on communication.