And Then We Mitigate

My husband is an Emergency Preparedness Merit Badge Counselor for Boy Scouts of America. I do not remember now why he took signed up for the responsibility, but for years he has counseled young men through the badge. Many of those years our sons' troop dedicated an entire weekend camp out to helping the boys earn the badge, including an emergency with injuries. While sorting campfire smoke laden clothes in the laundry room on Sunday afternoon, I would listen to Rich share about the "accident," find out which boy in the troop suffered severe injuries, and ask questions about how the troop solved the crises. I learned a new application of a word through that process - mitigate. At the end of every drill the troop would mitigate the accident; they would sit around and discuss what could be done next time to lessen the severity of a similar emergency.

Very Two

Monday morning I told crews at the ambulance house that, "someday Nathaniel will have a very two-year-old moment, probably when he is mad at me or wants to get a reaction, and pull his trach tube out." At 6: 31 Monday night, he proved me right.

Rich, Peter, Nathaniel, and I had gone for a walk and were coming up our sidewalk. Peter was ahead of the stroller; Rich and I behind it. Peter looked at Nathaniel who was in his stroller playing with his Ligntening McQueen matchbox car, then turned to unlock the door. Two hands were on the stroller tray playing with a car. Not angry. Not having a temper tantrum. Nathaniel was waiting happily with a smile on his face. Peter turned the key, pushed the door open, turned back towards Nathaniel and yelled, "He pulled his trach out!"

One Step at a Time

I have enjoyed watching Nathaniel adapt to having his right hand in a cast. He is very creative. Like in the way he decided to look at a book today. He carried his Daniel Tiger book around all day and refused to go outside unless I let him take it along. I am not sure about that cast pillow, but he seemed comfortable and happy in moment. Pretty happy playing with big brother in "bean dirt" earlier this week too.

Hand Sugery and Expectations

Hand surgery is behind us. Probably by the time I finish writing and uploading this post, the first three days post surgery will be also be behind us. Three days is the length of time I hear hand surgery pain is the most intense. Managing Nathaniel’s pain has been tricky and some unexpected respiratory issues complicated our post surgery hospital stay. But today I catch myself taking deep breaths and releasing loud exhales of relief. The big day is over. The surgeon cut Nathaniel’s right thumb metacarpal, rotated it one hundred and ten degrees, and pinned it back together. The doctor then sliced a segment of muscle on the pinky side of Nathaniel’s hand and brought it over to support the thumb and increase thumb to finger opposition. Wow. The whole thing amazes me. We will know the final outcome of the surgery in five weeks when Nathaniel’s cast comes off. But for now we rest in the surgeon’s explanation that things went well. I am glad the last four days are behind us.

An Evening with Chickens

There were three places I wanted to be on Saturday night: my sister-in-law's surprise fortieth birthday party in Wisconsin, our church's annual fundraiser to support outreach to the marginalized in St. Louis City, and an Eagle Scout ceremony for a young man Rich has encouraged for years.

Instead I spent Saturday evening standing outside a chicken coop with Nathaniel.

PULL! LIFT! CARRY!

I write so much about Nathaniel's communication needs, that I have not put into writing the other areas of development that we are addressing in therapy. There are many. Nathaniel continues to have a global developmental delay and some significant sensory processing needs. He has consistently received Occupational Therapy and Physical Therapy in addition to his twice weekly Speech Therapy.  We had a long day of appointments at St. Louis Children's earlier this month and the collective decision was to start some new weekly therapy there to address some of the sensory needs. We go tomorrow for our first visit, which increases OT to twice a week now. We are putting PT on hold for a time to allow for the extra focus on OT.